Thursday, February 25, 2010

I picked up this little beanie on sale for three bucks! What a steal right? I thought it would fit her for next year. However, after trying it on I think we'll have to buy a bigger one for next winter. Summer says she looks Dutch with it on.
With the Valentine's Day present from Aunt Summer. Grandma Cec made this new hat for her. Right now it's just a touch big. We had to sit back and laugh while I'm sure she was trying to figure out why her little world went dark. The things we do to her.
I had to buy this little outfit for her to wear this summer, after all it is for a 6mo old. But it fits now. To say the least the chemo is not affecting her appetite too much. (And all moms know sizes do vary. Right?) I love those little chunky legs. She had her second round of shots this week. She didn't even cry with the first one. I looked at my Mom is disbelief. But you better believe she cried for the second and third. She did really well though, no fever and she wasn't even cranky.
Thanks Aunt Summer for the cool hair clippies!
Valentine's Day dress Grandma Cec made. It makes me think she should have a basket full of watermelons, trying to sell them on the side of a NC road.



Look Sum, there's no escaping the dulap even when you are a baby!


Monday, February 22, 2010

Cut litte Valentine's Day dress from Grandma Cec.



This is how we keep her from becoming a popsicle in Wisconsin. OR would that be a
cheese-sicle?

The before...
...And After. She loves her Dad, rough play and all.

Saturday, February 13, 2010

What's up With Her Cheek?

So that's a question I've heard over and over for the last few weeks. Mostly it's been kids who even though they are tiny I still feel like pounding them when the words come out of their mouths. So look at the pictures below and notice Addisons right cheek, viewing the picture it would be the left cheek.
Week 8Week 7

Week 6

Week 5

Week 4


Ddi you see it shrink as we went back through time?

We marked December with a c-section and Addison's arrival, January by having my gallbladder out, and now February with Addison having a pic line placed and the start of her chemo. To say the least it's been a busy three months. We are hoping that the subsequent months are slow and boring.
It's time I did a post on Addison's condition. Maybe you've notice that in some of her more recent pictures the right side of her face seems a bit bigger than the left and that's because it is. When she was three weeks old I noticed what I thought was a red rash by her right ear. We were at church right before she was blessed. But the rash never went away and I noticed it was in her ear as well as behind. As it kept growing I realized it was a strawberry hemangioma. Sure enough the Dr. confirmed that it was a hemangioma,a non cancerous tumor or mass of blood vessels. He said it would keep growing until she was one and then gradually fade over the next few years.
We have been watching the hemangioma grow profusly over the last three weeks. We were not satisfied with the "watch and see" treatment and went back in to the pediatrician. He said it was definatley different than what he thought over the phone but still he said we should wait and see how it behaved. He sent us to an ENT the next day who said it wouldn't effect any of her functions it was just cosmetic. It was starting to close off her ear canal but he said you only need one good ear to hear from and that it shouldn't delay her speech. I was unimpressed and since the mass was starting to disfigure my baby's face I went home and furiously googled hemangiomas for the second time and discovered that there is a Children's Hospital three hours away from us that specializes in hemangiomas. I called last Friday and they set up an appointment for this last Monday.
We drove down to Milwaukee and the Dr. who specializes in hemangiomas said the kids hemangiomas which they termed "bad" were 54cm and Addison's measured 68cm. Yikes, beyond bad. The Dr. said it definatley needed treatment (exactly what we were looking for) as it was only going to get worse seeing as it took three weeks to get this big and it would continue to grow until she is eight months old. We were give three treatment options. After mulling over all three, their side effects, and outcomes we have decided to put her on a Chemotherapy treatment. I know, saying it in black in white, "we are voluntarily giving our child chemotherapy" is a very scary and sobering thought.
So two days ago, on Thursday we drove back down to Milwaukee and began her treatment process. She could have formula until 2am and then only Pedialite until 6am. Her appointment was at 8am. She was first sedated and an Echocardiogram (an ultrasound) of her heart to make sure her heart murmer was nothing to worry about. Then they sedated her again and placed her PICC line (an IV line that stays in her little arm for the whole treatment time line). Next she was given anethesia and had an MRI and finally she was given her first chemo treatment. Needless to say it was a very hard day. I think I can safely say it was the worst day of my life. She was super groggy the rest of the day, we got done at 5pm, and slept most of the time. The next day she was up and smiling and cooing which made us feel so good. However, today we can tell she definatley doesn't feel good. We are trying to keep her comfortable.
Addison's treatment should last for 18 weeks. Each week we'll go down to Milwaukee and she'll be given another round of Chemo. This treatment is the only one which not only stops the tumor growth but will shrink it by 90% as well. Teh remaining 10% should slowly regress over the years until you can't notice it at all.
So there's the explanation as to why you will see a difference in her pictures. If you would like more information on hemangiomas and the treatment we are undertaking visit Addison's blog to watch her progress at http://www.bumpcourage.blogspot.com/. Wish us luck and prayers.

Friday, February 5, 2010





















Multi-tasking Momma

For those of you who can't handle TMI (too much information) read no further.

So technically the moment you conceive you are a mother and then the moment you give birth your a mother too. But technically becoming a mother and then really feeling like you are a mother are two vastly different things. I have recently found that there are moments in life which make you truly realize and finally feel that you are a mother. While the past two months have held many of those moments there are three which stand out to me in stark contrast to the rest.
The first time I knew I was a mother I was looking at Addison in her isolet. They had just wheeled her in from doing one of those required "exams" that in my mind took way too long and made me anxious by not being able to see what exactly was going on. When I looked over at her I noticed her eyes. They were watery and while she wasn't crying at the moment I knew she had been. At that moment my heart broke and I wanted to cry too because I knew she had been in pain. It took everything I had to not start bawling myself. It was then that I KNEW I was a mother.
The second incidents is really a combination of many moments. It is wanting so desperately to grab the precious few minutes of sleep that you finally have and not being able to. Why can't you go to sleep when the baby is asleep...finally. It's because you have what I have dubbed "Mommy ears." That's right no matter how badly you want NOT to hear you hear every little sigh, movement, and cry no matter how brief it is. And while these sounds do not require your attention or action you hear them non the less. These new Mommy ears in combination with the constant worry that your new precious little one will somehow smother, in the blankets that are so tightly swaddled around her that she resembles a very neatly folded burrito, let me know for the second time that I had defiantly become a mother.
Now for the culminating experience of my discovering that I am a mother which occurred yesterday. I had gone out with my girlfriends for an early dinner and was back at the house where I threw Addison in the bathtub, washed her up, dressed her in her pajamas and glanced at the clock. I had just a few minutes to go until I needed to get to Young Women's yet there were three things which needed addressing before I left and there wasn't enough time to tackle them one at a time. (Ryan is underway and thus I only had two hands to accomplish this all with.) So last night I found myself feeding Addison in her car seat, while calling my sister back, all while sitting on the toilet taking care of business (this is the TMI part). And sitting there I suddenly realize exactly what all I was doing, I don't think I've ever multi-tasked so completely before, and I knew then that I was a mother.